This past week the side effects of radiation started to set in, my red blood counts still didn't respond after chemotherapy and I had my quarterly infusion of zolmeda. These three elements combined made for a pretty painful week.
Radiation, though I may have mentioned is my treatment of choice, apparently has some wicked side effects when targeted at the cervical spine / neck area; I'm second guessing my treatment preferences. First and foremost, roughly after the 10th day of radiation a terrible sore throat sets in. For me this started about last Sunday and continued to escalate through the week. Think of a sore throat times a billion.
When I went for my regular Monday infusion my labs showed my blood counts to still be lower than we would have wanted so we continued with another modified dose of navolbine. The goal is to keep hitting this monster as hard as we can! It was decided because of my lowered blood counts and my decreased energy that I'd come in on Tuesday for a two unit blood transfusion which was generally uneventful despite living out my dreams as a vampire.
Wednesday was a bad day. I still had the neck and shoulder pains from before but now combined with a worsening sore throat and whatever vampire energy I was supposed to receive was late. Additionally the zolmeda infusion, the same medicine old ladies take to prevent from breaking their bones, leaves an achey flu-like feeling for a couple days. I could barely eat or swallow and spent the day on the couch trying to force feed anything down my throat. That night I ran a low grade fever and sweat through 4 layers of sheets! The next day I had scheduled appointments with all my doctors so I figured we'd sort it out in the morning.
On Thursday the doctor at my first appointment took one look at me and admitted me to the short stay infusion center for hydration and pain control. I was in pretty bad shape but they were able to pump me back up and release me to the care of Autumn and Benson by the end of the day. To be on the safe side we scheduled an appointment the next morning to receive more fluids.
And on Friday, still unable to talk or eat or swallow my well needed medicines, I was admitted back to my penthouse suite in the Phillips House. They actually put me in the same room I had last time!
Welcome to my life :). One day at a a time!